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The Revision of the EU Regulations on Medicines for Children and Rare Diseases | Policy Dialogue

An online policy discussion to reflect on access to orphan drugs and paediatric medicines.

Children and patients with rare diseases can't wait any longer for action on access to medicines. The objectives of this virtual policy dialogue are to:

  • consider and discuss actions that should be prioritised in Europe to accelerate timely access to high-quality, safe and affordable medicines for patients;
  • inform a wider audience about civil society's recommendations for improving the 2000 Orphan Regulation and the 2006 Paediatric Regulation.

Invited speakers (from the European Commission, European Parliament, SIOPE, CCI Europe, ECL, EFPN and Member States) will reflect on how to improve both Regulations.

Video recording and screenshot images of speakers and the participants may be taken for internal reporting.

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  • innovation | research policy
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